For a few moments, Nancy Peruyero imagined what Nicolas’ life might be like without the relentless myoclonic seizures every day. And for the first time, she allowed herself to hope, an emotion she had rarely felt since that August afternoon in 2009 when her youngest son was diagnosed with Batten disease, an unusual neurological disorder marked by seizures, loss of motor skills and mental impairment. His life expectancy with the disease is no more than 12 years. He turned 9 on Oct.2.
Nancy Peruyero sits with her son Nicolas, 9, after a physical therapy session. Nicolas has Batten Disease, an inherited disorder of the nervous system that causes seizures.
“We want to try medical cannabis in hopes that it will calm his seizures and help him become more alert and sleep better,” said Peruyero, 41, who first watched the CNN documentary Weed about a year ago. “We want to be able to have all our options. For us, this is a quality of life issue. What parent would not do everything they could to help their child?”
http://www.miamiherald.com/news/state/florida/article3377889.html
No comments:
Post a Comment