Monday, 26 January 2015

Girl, 9, takes medical cannabis fight to Texas Capitol

The 9-year old from Rowlett enjoys cartoons, playing with her younger sister and playing golf. Yet in addition to the usual concerns of a kid her age, she's also fighting a life and death battle against epilepsy.

Alexis' father Dean Bortell, a U.S. Navy veteran, says Alexis' first seizure happened at their Rowlett, Texas home in July 2013.



"We were folding clothes and all of a sudden I hear my wife scream," said Dean. "I look over and Alexis has literally gone vertical. She's stiff as a board and mom's holding her. We get her down on the couch and she's shaking."

The Bortells rushed to a nearby hospital, and doctors eventually diagnosed Alexis with epilepsy. Dean says the prescribed medication Carbatrol was "like throwing gasoline on a fire."

"It was terrible. Her seizures went from mainly at night to around the clock," said Bortell. Even more frustrating, Bortell says the next drug Depakote gave Alexis tremors, spasms, and altered her personality -- and the seizures still came. Alexis describes the episodes as "very scary."

"I kinda black out, and sometimes I start chomping and shaking," she said.

When the pharmaceutical complications resulted in doctors finally ordering the medications tapered off, Dean viewed the decision as an admission of failure. The Bortells now rely solely on a supply of rescue medication, and Dean worries whether it will be enough to save his daughter if her condition suddenly worsens.

"If the big one does come, what are we going to do? I mean that scares us more than anything," said Bortell.
Desperate, the family happened to catch 'Weed 2,' the second CNN documentary hosted by Dr. Sanjay Gupta focused on the medical science of marijuana -- also known as cannabis. The documentary details the use of oils and tinctures developed from marijuana plants to stop the seizures without the harmful side effects of powerful -- and profitable -- pharmaceutical medication.

The Bortells were soon doing their own research; consulting with neurologists and paying visits to Colorado, where the company Dean works for is based and where medical marijuana is legal. On the advice of doctors there, Alexis was able to qualify for and obtain a state-issued "red card," which allows doctors to prescribe her marijuana-based medication.

"She is a legal patient in Colorado," said Dean. "She has been evaluated by two specialists who believe medical cannabis is her best shot at a normal childhood."

But there's a problem - The Bortells can't use the medication as long as they live in Texas, which bans both the medical and recreational use of marijuana. 

Texas imposes even harsher penalties for possession of oils and tinctures, the forms most commonly used by those taking marijuana for medical purposes. What's more, the Bortells could be punished for seeking marijuana-based treatments out of state.

Continue reading and watch KVUE report at: http://www.kvue.com/story/news/politics/2015/01/21/alexis-bortell/22134895/

Tuesday, 20 January 2015

Dr. “Cannabis” Alan Shackelford puts medicine into marijuana, in Israel



Thirty-five years ago an Israeli researcher documented the case for medicinal cannabis to treat epilepsy. It was one of these studies by a Prof. Raphael Mechoulam that Denver-based physician Dr. Alan Shackelford read when he was debating one of the hardest questions of his career:

Should he, could he? give a 5-year-old pot?

That girl, Charlotte Figi (pictured below), was fighting for her life. Cursed with a rare form of epilepsy called Dravet’s Syndrome, Charlotte had about 300 seizures a week, some bringing her to the brink of death. Her parents were at their wits end and wanted to try her on medicinal cannabis. They read somewhere that it might work
Should he, could he? give a 5-year-old pot?

Thirty-five years ago an Israeli researcher documented the case for medicinal cannabis to treat epilepsy. It was one of these studies by a Prof. Raphael Mechoulam that Denver-based physician Dr. Alan Shackelford read when he was debating one of the hardest questions of his career:
Should he, could he? give a 5-year-old pot?
That girl, Charlotte Figi (pictured below), was fighting for her life. Cursed with a rare form of epilepsy called Dravet’s Syndrome, Charlotte had about 300 seizures a week, some bringing her to the brink of death. Her parents were at their wits end and wanted to try her on medicinal cannabis. They read somewhere that it might work.
- See more at: http://www.greenprophet.com/2015/01/dr-cannabis-alan-shackelford-puts-medicine-into-cannabis-in-israel/#sthash.thPOcMqG.dpuf
 http://www.greenprophet.com/wp-content/uploads/charlotte-ligi-cannabis-medicine-shackelford.jpg
Thirty-five years ago an Israeli researcher documented the case for medicinal cannabis to treat epilepsy. It was one of these studies by a Prof. Raphael Mechoulam that Denver-based physician Dr. Alan Shackelford read when he was debating one of the hardest questions of his career:
Should he, could he? give a 5-year-old pot?
That girl, Charlotte Figi (pictured below), was fighting for her life. Cursed with a rare form of epilepsy called Dravet’s Syndrome, Charlotte had about 300 seizures a week, some bringing her to the brink of death. Her parents were at their wits end and wanted to try her on medicinal cannabis. They read somewhere that it might work.
- See more at: http://www.greenprophet.com/2015/01/dr-cannabis-alan-shackelford-puts-medicine-into-cannabis-in-israel/#sthash.thPOcMqG.dpuf
 Charlotte went from 300 seizures a week to none.


. “I wasn’t intending on seeing her,” Shackelford recalls on a recent visit to Israel. “I had no experience with children. My oldest patient was 103 and the treatments were working well on older patients, including some with seizures, but I wasn’t sure it would be appropriate for a child of five.”

Shackelford then poured over a stack of Charlotte’s medical records: “I decided that Charlotte would surely die if we didn’t do something to help her,” he tells Green Prophet. “As a doctor we take an oath that if we can help someone we must do what we can –– ‘cure when possible, comfort always’.”

Charlotte’s mother had brought to him a stack of convincing medical records. Then Shackelford made an appointment at his office: “There I met a girl just over a meter tall. On the way she’d had a seizure in the car, two in the waiting room and two while I was evaluating her.

“These were grand mal seizures.

“I made extensive notes.

“Charlotte was unresponsive to questions. She couldn’t eat, couldn’t drink and because nothing was working for her, she as no longer on any medicines.”




It was worth a shot.

Now the question was how to dose and administer marijuana to a little girl. And where to find plants with high levels of CBD (cannabidiol) , but only small amounts of THC (tetrahydrocannabinol), the primary psychoactive compound found in cannabis? Based on ratios presented in the study Shackelford decided on 6mg/kilo (or 3 mg/pound) of Charlotte.

But Charlotte couldn’t smoke.

Normally growers in the Colorado area pride themselves on plants very high in THC, or the molecule that gets you high. This is not what the doctor wanted to give to a small child. Shackelford found a local grower that could supply a small amount to try. The ratios were 17 molecules of CBD to one molecule of THC but it cost an extraordinary $800 an ounce. This is 4 times the price of high-quality medical grade cannabis, which costs about $200 an ounce.

From this precious bit of plant Charlotte’s mom helped make an extract to give to her daughter.
Miraculously, “after the first dose the seizures stopped,” Shackelford reports. “She went from 300 seizures a week to none. But the family was concerned that they would have no more access to the drug.”

Cannabis strain called Charlotte’s Web born

Then a local group of marijuana growers, the Stanley Brothers from the area agreed to create an extract with the same high CBD content and low THC. Today this extract is called Charlotte’s Web and parents are moving to the Colorado area to access this treatment for children in similar situations.



Continue reading: http://www.greenprophet.com/2015/01/dr-cannabis-alan-shackelford-puts-medicine-into-cannabis-in-israel/
Thirty-five years ago an Israeli researcher documented the case for medicinal cannabis to treat epilepsy. It was one of these studies by a Prof. Raphael Mechoulam that Denver-based physician Dr. Alan Shackelford read when he was debating one of the hardest questions of his career:
Should he, could he? give a 5-year-old pot?
That girl, Charlotte Figi (pictured below), was fighting for her life. Cursed with a rare form of epilepsy called Dravet’s Syndrome, Charlotte had about 300 seizures a week, some bringing her to the brink of death. Her parents were at their wits end and wanted to try her on medicinal cannabis. They read somewhere that it might work.
- See more at: http://www.greenprophet.com/2015/01/dr-cannabis-alan-shackelford-puts-medicine-into-cannabis-in-israel/#sthash.thPOcMqG.dpuf
Thirty-five years ago an Israeli researcher documented the case for medicinal cannabis to treat epilepsy. It was one of these studies by a Prof. Raphael Mechoulam that Denver-based physician Dr. Alan Shackelford read when he was debating one of the hardest questions of his career:
Should he, could he? give a 5-year-old pot?
That girl, Charlotte Figi (pictured below), was fighting for her life. Cursed with a rare form of epilepsy called Dravet’s Syndrome, Charlotte had about 300 seizures a week, some bringing her to the brink of death. Her parents were at their wits end and wanted to try her on medicinal cannabis. They read somewhere that it might work.
- See more at: http://www.greenprophet.com/2015/01/dr-cannabis-alan-shackelford-puts-medicine-into-cannabis-in-israel/#sthash.thPOcMqG.dpuf
Thirty-five years ago an Israeli researcher documented the case for medicinal cannabis to treat epilepsy. It was one of these studies by a Prof. Raphael Mechoulam that Denver-based physician Dr. Alan Shackelford read when he was debating one of the hardest questions of his career:
Should he, could he? give a 5-year-old pot?
That girl, Charlotte Figi (pictured below), was fighting for her life. Cursed with a rare form of epilepsy called Dravet’s Syndrome, Charlotte had about 300 seizures a week, some bringing her to the brink of death. Her parents were at their wits end and wanted to try her on medicinal cannabis. They read somewhere that it might work.
charlotte-ligi-cannabis-medicine-shackelford
“I wasn’t intending on seeing her,” Shackelford recalls on a recent visit to Israel. “I had no experience with children. My oldest patient was 103 and the treatments were working well on older patients, including some with seizures, but I wasn’t sure it would be appropriate for a child of five.”
Shackelford then poured over a stack of Charlotte’s medical records: “I decided that Charlotte would surely die if we didn’t do something to help her,” he tells Green Prophet. “As a doctor we take an oath that if we can help someone we must do what we can –– ‘cure when possible, comfort always’.”
Charlotte’s mother had brought to him a stack of convincing medical records. Then Shackelford made an appointment at his office: “There I met a girl just over a meter tall. On the way she’d had a seizure in the car, two in the waiting room and two while I was evaluating her.
“These were grand mal seizures.
“I made extensive notes.
“Charlotte was unresponsive to questions. She couldn’t eat, couldn’t drink and because nothing was working for her, she as no longer on any medicines.”
- See more at: http://www.greenprophet.com/2015/01/dr-cannabis-alan-shackelford-puts-medicine-into-cannabis-in-israel/#sthash.H0Q6WNSn.dpuf
Thirty-five years ago an Israeli researcher documented the case for medicinal cannabis to treat epilepsy. It was one of these studies by a Prof. Raphael Mechoulam that Denver-based physician Dr. Alan Shackelford read when he was debating one of the hardest questions of his career:
Should he, could he? give a 5-year-old pot?
That girl, Charlotte Figi (pictured below), was fighting for her life. Cursed with a rare form of epilepsy called Dravet’s Syndrome, Charlotte had about 300 seizures a week, some bringing her to the brink of death. Her parents were at their wits end and wanted to try her on medicinal cannabis. They read somewhere that it might work.
charlotte-ligi-cannabis-medicine-shackelford
“I wasn’t intending on seeing her,” Shackelford recalls on a recent visit to Israel. “I had no experience with children. My oldest patient was 103 and the treatments were working well on older patients, including some with seizures, but I wasn’t sure it would be appropriate for a child of five.”
Shackelford then poured over a stack of Charlotte’s medical records: “I decided that Charlotte would surely die if we didn’t do something to help her,” he tells Green Prophet. “As a doctor we take an oath that if we can help someone we must do what we can –– ‘cure when possible, comfort always’.”
Charlotte’s mother had brought to him a stack of convincing medical records. Then Shackelford made an appointment at his office: “There I met a girl just over a meter tall. On the way she’d had a seizure in the car, two in the waiting room and two while I was evaluating her.
“These were grand mal seizures.
“I made extensive notes.
“Charlotte was unresponsive to questions. She couldn’t eat, couldn’t drink and because nothing was working for her, she as no longer on any medicines.”
- See more at: http://www.greenprophet.com/2015/01/dr-cannabis-alan-shackelford-puts-medicine-into-cannabis-in-israel/#sthash.H0Q6WNSn.dpuf

Monday, 19 January 2015

Support Adam Koessler: 50,000 people sign petition supporting dad facing jail for giving dying daughter cannabis oil

Nearly 50,000 people have signed a petition calling on politicians to help a dad who faces criminal charges after giving his dying daughter cannabis oil.

Australian Adam Koessler was arrested and charged earlier this month after giving two-year-old Rumer Rose the oil to relieve her symptoms of late-stage cancer - something he claims led to a "miraculous" improvement in her condition.


But his bail conditions mean he cannot have contact with his sick daughter, who is now in intensive care after her condition deteriorated.


 Adam claims Rumer Rose, 2, who has stage 4 cancer, showed 'miraculous' signs of improvement after she was given the medicinal oil

By this evening, almost 50,000 people had signed a petition calling for Queensland premier Campbell Newman and justice minister Jarrod Bleijie to intervene, saying "it is inhumane and unjust to keep a parent, who acted out of love for his child [and] wanting to prolong her life, away from her during such severe illness".

The petition adds: "Medical cannabis has been legalised in many countries and jurisdictions around the globe. There is ample evidence to show that it has many beneficial effects for cancer patients without the harmful side effects and other associated risks of current drug treatments. In fact working in conjunction with the recommended treatment regime, medical cannabis has also been proven to alleviate these adverse side effects.

Continue reading: http://www.mirror.co.uk/news/world-news/adam-koessler-50000-people-sign-5001305